Pam Cusick

Pam Cusick is a leading advocate for patient engagement and innovation in healthcare. With over 30 years of experience in research design and implementation, she serves as Senior Vice President of Rare Patient Voice, where she connects patients and caregivers with researchers to ensure their voices shape the future of medicine.

Pam’s background in psychology and public health communications drives her mission to make research more inclusive and patient-centered. Beyond RPV, she mentors women in research and healthcare through WIRe and the Healthcare Businesswomen’s Association, and remains active in advancing global patient engagement through ISPEP.

A passionate leader and changemaker, Pam is dedicated to ensuring every patient’s story contributes to better research—and better lives.