Pamela Cusick

Senior Vice President

Rare Patient Voice

Pamela J. Cusick is an experienced research professional with more than 30 years of expertise in study design, implementation, and analysis. Her background in public health communications and research, coupled with her passion for patient advocacy, dovetail with Rare Patient Voice’s mission and vision. Pam earned a BA in Psychology from Sweet Briar College, and a MA in Psychology from the New School for Social Research. Pam is Past-President of the Board of Directors and Scientific Advisory Council Lead for the Horses and Humans Research Foundation. Before joining Rare Patient Voice, Pam was Special Projects Manager at ARDX, where she managed key corporate initiatives including research, public relations, marketing, and human resources programs for a management consulting organization. She also served as senior advisor on organizational and leadership issues in the areas of education and development, corporate and employee communications, and employee relations. Prior to ARDX, Pam was an independent research consultant, providing qualitative research expertise to clients in the healthcare, consumer goods, and entertainment industries, with clients including NFO/Migliara Kaplan, AIR/Prospect Associates, Dentsply, XM Satellite Radio, and ARDX.

As Senior Vice President of Rare Patient Voice, Pam’s focus is on the continued growth and success of RPV, with an eye on client services, business development, and oversight of outreach and panel management, marketing, and human resources.