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Program

Data Privacy in Qualitative Research Certificate 2023


Average Rating:
   9
Categories:
Business Practices
Speaker(s):
Lisa Horwich |  Jessica Santos |  Jessica Clark
Original Program Date:
Jul 06, 2023
Search Description:
The evolving landscape of data privacy has a major impact on how qualitative researchers handle participant data, and being familiar with the major data privacy regulations including HIPAA, GDPR and CCPA is a must. This course will empower you not only to understand the universe of data privacy but also to implement best practices across your qualitative research projects.



Overview

The evolving landscape of data privacy has a major impact on how qualitative researchers handle participant data, and being familiar with the major data privacy regulations including HIPAA, GDPR and CCPA is a must. This course will empower you not only to understand the universe of data privacy but also to implement best practices across your qualitative research projects. This course was originally developed in 2021, and has been updated for 2023 to include the latest information, including hot topics like the use of generative AI vs predictive AI and the latest US and Global Privacy laws. 


Participants will learn:

  • What’s inside the major data privacy regulations
  • Points of risk for participants and data, and how to mitigate those risks
  • How to incorporate best practices into your research, from recruiting and fielding to reporting and data storage

Professionals who complete the QRCA Data Privacy in Qualitative Research course (including quizzes to test their understanding) will earn a Data Privacy in Qualitative Research Certificate that can be used to demonstrate data privacy expertise to colleagues and clients.


Four Virtual Sessions comprise the 

Data Privacy in Qualitative Research Certificate:

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Original Dates: July 6, July 13, July 20, July 27, 2023 | Now available On Demand!

1. The Basics: Current and Future Legislations & Guidelines Around Privac

  • Jessica Santos, Global Compliance Director & Privacy Officer at Cerner Enviza, Oracle Life Sciences
This session will focus on the following:
  • Case studies of data privacy breaches that occur in research – especially qualitative research
  • GDPR contents (European)
  • HIPAA contents (Healthcare)
  • CCPA/CPRA/VCDPA…. (US privacy laws)
  • Predictive AI vs. Generative AI
  • IRB (Academic/Healthcare)
  • Overview/Disclosure/Consent
  • Working with stakeholders (e.g. recruiters, research agencies, observers, sponsors, facilities, software providers, etc.) and Risk to the Qualitative Professional

3. The Legal Considerations of Privacy: Managing Risk, Exposure, and Liability

  • Jessica Clark, Privacy and IP Counsel, Kelly & Simmons, LLP

This session will focus on the following:

  • How do privacy and security incidents happen?
  • What does the regulatory enforcement landscape look like and what kind of penalties are involved?
  • What types of risk reduction strategies are available?
  •  How can you limit liability through careful contracting?
  • How can you manage liability through insurance? (limitations of traditional policies, first vs. third-party coverage)
  • What should you know when responding to a breach or complaint? (discovery, preservation, and privilege issues)
  • Who can help? (attorneys, forensic firms, PR consultants) 

2. The Practical: Essential Documents and Measures You Need

  • Jessica Santos, Global Compliance Director & Privacy Officer at Cerner Enviza, Oracle Life Sciences
This session will focus on the following:
  • How to develop a Consent Template and a Privacy Notice
  • What does your consent / privacy policy statement need to include to integrate with client’s requirements globally?
  • Consent vs. Privacy Notice vs. Privacy Policy Statement: How is it different? And when to use what?
  • What steps you need to take to ensure you’re compliant with technology/liability/data care?
  • Insurance and security safeguarding you should implement to protect yourself

4. Connecting to Qualitative Research: How to Incorporate into Our Work

  • Lisa Horwich, Founder of Pallas Research Associates
This session will focus on the following:
  • Respondent Privacy and Our Responsibilities               
  • Practical Tips Qualitative Professionals Can Do
  • Transparency for Studies = What Upfront Info We Owe
  • Understanding what Facilities Do and Don’t Do with Respondent Info
  • Understanding of how to use info as a qualitative professional (e.g. Password Protected on Remote Server)
  • Role/Liability for Qualitative Professionals vs. Facility vs. Other
  • Tips and Tricks for Personal Privacy
  • AI - What is a qualitative professional's responsibility with respect to tools like ChatGPT?

Speaker

Lisa Horwich's Profile

Lisa Horwich Related seminars and products

Managing Partner

Pallas Research Associates


Lisa Horwich is the founder of Pallas Research Associates, based in Seattle, Washington. Pallas focuses on B2B research primarily for the tech and manufacturing industries. Lisa started her research career as a quant researcher but found she really enjoys talking to people rather than crunching numbers. Prior to her career in market research, Lisa spent time in software development as well as ERP system integration. She currently co-chairs the B2B SIG for QRCA and is the past president of the Puget Sound Research Forum. Lisa has spoken widely on technology topics and has been published in Research World and Greenbook. In her spare time, she practices martial arts, is a voracious reader and loves to bake treats.


Jessica Santos's Profile

Jessica Santos Related seminars and products

Global Compliance Director & Privacy Officer at Cerner Enviza

Oracle Life Sciences


Dr Jessica Santos is the Global Compliance Director & Privacy Officer at Cerner Enviza, Oracle Life Sciences, and provides consulting and research to communicate the value and potential for products and services that fall under healthcare regulation and legislation. Jessica is providing oversight and support across global offices in regulation, ethics and compliance, and responsible for maintaining, anticipating and coordinating all activities regarding compliance, privacy, ethics and quality framework on RWR (Real World Research) and MR (Market Research). Jessica is also an experienced statistician, analyst and methodologist. She gained her reputation through her publications and professional committee work in the industry. Jessica is a frequent speaker and contributor in major conferences. She has a PhD in Social Science and MRS fellowship. Jessica is a member of BHBIA and EphMRA code of Ethics Committee, UK Research Ethics Committee, reviewer and chair of ISPOR Code of Conduct Committee. 


Jessica Clark's Profile

Jessica Clark Related seminars and products

Privacy and IP Counsel

Kelly & Simmons, LLP


Jessica Clark specializes in advising technology-driven clients on privacy, data security, and intellectual property matters. She helps clients identify and manage privacy and security risk; comply with state, federal, and global data protection laws; and develop and implement internal privacy and security compliance programs (including programs tailored for the CCPA/CPRA, GDPR, and COPPA). She has extensive experience drafting and negotiating privacy and IP terms in commercial contracts; counseling clients on privacy and IP implications in M&A and financing transactions; and advising clients on business strategy, marketing, and vendor management including strategies to effectively secure and capitalize on valuable IP rights. Among other things, she works with clients to prepare and negotiate employment and consulting agreements, IP license agreements, product development agreements, and asset purchase agreements.

Jessica began her career at the U.S. Federal Trade Commission (FTC) in the Division of Privacy and Identity Protection, where she led numerous investigations and negotiated settlements relating to consumer privacy, data security, and credit reporting. She obtained her law degree from the University of California, Berkeley School of Law.